People

a. Ms Victoria Clare
CEO
a. Ms Victoria Clare
CEO
Victoria has many years’ experience in the not for profit sector, most recently as director of a surgical charity working in Ethiopia, and also as CEO of the Head & Neck Cancer Foundation in the UK.Victoria knows first-hand how important the charity is in helping women facing ovarian cancer and says she feels “very connected” to it. Five years ago she received support from Ovacome for what turned out to be a benign ovarian tumour. Whilst she feels incredibly lucky to have received her diagnosis she then lost a couple of friends and colleagues to the disease.  She says “Ovarian Cancer is a much overlooked cancer, the symptoms are often so similar to other conditions that sadly there are still far too many women being diagnosed late.  At Ovacome we are doing some great work to address these problems, we have a fantastic board of experts and a wonderful group of engaged staff, trustees and volunteers - I want to make sure that we support as many women (and family members) as we can, at the right time and in the right way” To contact Victoria:  v.clare@ovacome.org.uk
b. Ms Anna Hudson
Support Service Manager
b. Ms Anna Hudson
Support Service Manager
I started working in healthcare in 1999 as a physiotherapy assistant in a hospice. This experience sparked my enduring interest in cancer and palliative care. I went on to train as an occupational therapist, working mainly in cancer care and palliative care, within hospitals and at another hospice.  I then changed roles to staff a busy cancer Help Centre, which I later managed. I am pleased to be contributing to the excellent work of Ovacome through supporting people affected by ovarian cancer.  If there is anything you would like to talk through, please call the Freephone 0800 008 7054 10am-5pm Monday-Friday or email support@ovacome.org.uk
c. Ms Ruth Grigg
Information and Volunteer Manager
c. Ms Ruth Grigg
Information and Volunteer Manager
My job is to write Ovacome’s patient information, making sure it is up to date, balanced and reflects evidence based research. I also lead our innovative Survivors Teaching Students project which means I recruit volunteers to present their stories to medical and other clinical students – tomorrow’s doctors and clinicians - to promote earlier diagnosis. These two roles mean I meet a lot of Ovacome members which is a very enjoyable part of my work. My background is in health reporting, editing, campaigning and public relations in the charity sector, for trade unions and for the press. I have always had a strong interest in health, especially women’s health, and most of my work has reflected this. I came to Ovacome in 2008 so I have been a part of many dynamic changes within the charity and across the ovarian cancer sector. I look forward to all the women we work for having access to effective treatments and so living healthier lives.
d. Ms Lee Priestly
Fundraising Manager
d. Ms Lee Priestly
Fundraising Manager
Lee has worked within the arts for nearly 20 years, where she has fundraised to secure projects and has been involved in curating exhibitions, lecturing, researching, working on large public arts projects, curating film programmes, planning and arranging concerts. She graduated from East London University with a BA Hons 2:1 Visual Theories: Art and Film and a Masters from The Royal College of Art in Arts Administration: Curating and Commissioning Contemporary Art. She is thrilled to have joined Ovacome at the end of February: “I have had the privilege of getting to know the amazing people actively fundraising for our work. I have also been touched by the donations we have received since I started. We cannot thank you enough. “In the coming months I will be working hard to fundraise further. We have major projects that we will be developing over the coming 18 months: projects that will make a difference. We cannot thank you enough for supporting our valuable work, helping us to help as many women and their families as we can through our; support telephone line, online forum, raising awareness through working with MPs, our research at Birmingham University and our Survivors Teaching Students project.” Please do get in touch with Lee if you would like information about various ways to fundraise or to find out about our charity places for running, cycling, obstacle courses and challenges. 020 72996651
e. Ms Juliet Morrison
PR representative for Ovacome
e. Ms Juliet Morrison
PR representative for Ovacome
Juliet Morrison has been the PR representative for Ovacome for the past eight years and more recently the editor of its thrice-yearly newsletter. She has over 25 years experience as a journalist and originally became involved in the charity when her mother was diagnosed with ovarian cancer. Juliet was instrumental in coming up with the charity’s BEAT acronym of the main symptoms of the disease, which has been at the centre of awareness raising for Ovacome ever since. She has spearheaded a series of high-profile PR initiatives, including the successful #TellYourDaughter social media campaign that attracted support from celebrities such as Edwina Currie, Jenny Eclair, Michelle Heaton and Lorraine Kelly and was covered extensively across the national media. She lives in Brighton with her husband, two children and Scottie dogs.
f. Dr Cathy Hughes
Chair of Ovacome
f. Dr Cathy Hughes
Chair of Ovacome
I was delighted to be appointed Chair of Ovacome in May 2014. I am a registered nurse and have worked in cancer care for over 25 years. After qualifying in North Wales in the mid 1980s, I started my career focusing on surgery and gynaecology. I went off to work in Australia and, after six months in high dependency surgery, I transferred to a gynaecology unit that specialised in the care of women with gynaecological cancer. Coming from a district general hospital to a cancer centre opened my eyes to the differences in care and treatment when specialist services are concentrated and the volume of patients allows expertise and support services to develop. When I returned to the UK in 1989, I was appointed as one of the first clinical nurse specialists (CNS) in gynaecological cancer in the country. I worked at a specialist service at the Samaritan Hospital for Women that later combined with St Mary’s and the Hammersmith Hospitals as part of Imperial Healthcare in London. I worked in a great team that really cared about their patients and delivering high quality care; pushing the boundaries to improve treatments and training many of the specialists that are working around the country. I was a founder member of the National Forum of Gynaecological Oncology Nurses (NFGON). I first heard of Ovacome in 1996 when I read Sarah Dickinson’s article in Good Housekeeping. Since then I have seen Ovacome grow, and support thousands of women, their partners, families and friends. I even attended a very early AGM and won a magnificent cake in the raffle. I left Imperial to work for the West London Cancer Research Network and then went back into clinical care at the Royal Marsden Hospital, where I was again surrounded by a brilliant team, many of who are world leaders in their field. I have also held national posts in cancer patient safety, at the National Patient Safety Agency and cancer survivorship for Macmillan Cancer Support. I continue to support the RCN, commenting on issues around gynaecological cancer for NICE and other organisations. I am the RCN representative and vice chair of the Management Board at the National Collaborating Centre for Cancer which develops cancer guideline for NICE. I was a member of the Guideline Development Group for the recognition and initial management of ovarian cancer NICE guideline (CG122) and also for the ovarian cancer Quality Standards. And so I would now like to stand for chair, knowing that Noëline would support me in the position. I would hope to continue to support Louise our chief executive and the team in achieving their goals and objectives. I would hope to adequately support the board, directing policy and strategy and implementing board decisions. My main aim is to be responsive to the members of Ovacome and to ensure that our goals and objectives are never far from the needs of our members. I am married with two grown up children and one very beautiful grandaughter. I live in West London with my husband, daughter, dog and three cats. I love reading, lots of crime but will also read just about any award winner, I love meeting up with friends, doing the garden and walking the dog. I have not had ovarian cancer and would not pretend that I have an understanding of what that feels like. But I have had the privilege of meeting many women with the disease and being a part of their story. I feel that I have the time and energy, as well as the skills, to be able to contribute to the support of women with ovarian cancer across the UK
g. Mr Simon Chantrey
Treasurer
g. Mr Simon Chantrey
Treasurer
“Following my wife’s death I had wanted to do something to help women with ovarian cancer and their families. I had been married to Susanna for 36 years and she had her 60th birthday in her last year, two and a half years after initial diagnosis.   “I had been talking about becoming a regional ovarian cancer coordinator (a ROCC) for the charity, but at an induction meeting Noëline, who was Ovacome’s chair at the time, made a beeline towards me and almost immediately asked if I would be interested in the treasurer role. I’m still unsure how she knew I was an accountant.   “It seemed a logical way to use my experience. I am a qualified chartered accountant, although my career had taken me in a more general financial direction in the city and elsewhere. Latterly, I became heavily involved in the financing of the early cable television industry in the UK and then acted as financial adviser to a range of smaller companies in helping them to grow. My workload ran down during my wife’s illness, so 2006 was my last full year.   “I have a variety of interests, with golf a major consumer of time! I finished a year as captain of my golf club last May and was once its treasurer. I also play bridge and am an active theatre goer. I follow Formula One, cricket (I am a member of Surrey County Cricket Club at the Oval), golf and tennis. About six years ago I set myself a target of going to as many F1 circuits as possible and have been to 11 to date; this provides a nice centrepiece for holidays in lovely places.   “The key is for me to help Ovacome succeed and grow in its role as a support network. This can be done by managing its finances as tightly as possible and providing trustees and staff with the financial information that can help them in their roles: typically taking a half day a week of my time.   “I have two sons, a daughter and six grandchildren – ranging from age one to 11. They live quite near my home in Woking, Berkshire, so I get to see them quite regularly. I have a partner who had been a good friend of Susanna’s.
h. Victoria von Wachter
Trustee
h. Victoria von Wachter
Trustee
Victoria’s first degree was in Biochemistry at Southampton University followed by an MPhil in Biochemical Genetics jointly sponsored by Southampton University and Magdalen College, Oxford. Victoria then pursued a successful career in industry as an Industrial Relations specialist within the manufacturing, broadcasting and water treatment and supply sectors, and then as a self-employed management consultant. Victoria was awarded first class honours in her LL.B from the University of London. She then took the Bar Vocational Course at the ICSL from 1995 to 1996 and was called to the Bar by Gray’s Inn in July 1997. Victoria’s main areas of practice are employment and discrimination law. She has successfully represented clients in both the public and private sectors. Victoria is adept at handling complex and lengthy employment law cases with special expertise in all types of discrimination and whistleblowing claims. Victoria has a lifelong interest in horses and riding – she represented Great Britain at junior level in three day eventing and is currently the Performance Test Director of the National Stallion Association. Member and a registered assessor of the British Psychological Society Fellow of the Chartered Institute of Personnel and Development.
i. Lesley Sage
Trustee
i. Lesley Sage
Trustee
Lesley has many years experience involved in the management of learning and development in a fast-moving commercial environment, demanding voluntary work in one of England’s eight High Security prisons on the Independent Monitoring Board and also ovarian cancer which was diagnosed in May 2011.   During the rebuilding of life after a second major operation and dose-dense chemotherapy, she went to the London Marathon to support her son-in-law and there saw a runner in an Ovacome t-shirt. After attending the 2015 Members Day, she volunteered for STS and to be considered as a Trustee. She lives in South Lincolnshire, is married with two children and five grandchildren.  Hobbies include hill walking, bird watching, yoga, pilates, swimming, growing vegetables, cooking and more recently learning to spin and weave.
k. Jenny Agutter OBE
Patron
k. Jenny Agutter OBE
Patron
Ovacome is ever thankful for having the greatly admired British actor Jenny Agutter OBE as its patron. Jenny came across our charity when it was set up by Sarah Dickinson some 20 years ago, and she has been deeply involved with it ever since. This has been especially appreciated as Jenny has no personal link to ovarian cancer. She wanted to help after her son, who was at school at the time, told her about a girl in his class who had lost her mother to the disease. Despite her heavy workload, not least with her role as Sister Julienne in the BBC’s popular Call the Midwife drama, Jenny always goes out of her way to help Ovacome. She has been the reason on many occasions for Ovacome persuading the press to write about our charity, by agreeing to be interviewed herself. And you will have seen Jenny’s image on many a front cover of our newsletter, showing how she supports our awareness campaigns. We were delighted to hear that Jenny was honoured with an OBE for her tireless work for charitable services, in 2012. She said she accepted the award for all those working for good causes.
l. Mr Adrian Dickinson
Patron
l. Mr Adrian Dickinson
Patron
Adrian, husband of Sarah, Ovacome's founder, has been involved in the charity since it's inception. His first role was making tea for the Committee, but as Sarah's disease progressed, he took on a more active role as Secretary to Ovacome. In this capacity, he wrote the very first website, though this is now managed by Jatech. Adrian's main contribution to the Ovacome is in the area of Strategy and building a consensus around the competing demands on Ovacome's modest resources.
m. Pf. Sean Kehoe
Head of the Ovacome Medical Advisory Board
m. Pf. Sean Kehoe
Head of the Ovacome Medical Advisory Board
Professor Sean Kehoe is a Fellow of St. Peters College Oxford and presently the President of the British Gynaecological Cancer Society. He qualified in Trinity College Dublin, and came to the UK in the 1990's to undertake research into ovarian cancer. After this he undertook training in Gynaecological Oncology. He is a Medical Advisor and Trustee of Ovacome. He works in Oxford, having developed the Oxford Gynaecological Cancer Centre which was formally established in 2005, and recently moved to a new purpose built hospital on the Churchill Hospital site in Headington. He has written many papers on cancer and pre-cancer and lectures regularly at National and International Meetings.
n. Pf. Christina Fotopoulou
Medical Advisory Board Member
n. Pf. Christina Fotopoulou
Medical Advisory Board Member
Professor Christina Fotopoulou is a consultant gynaecological oncologist at Queen Charlotte's & Chelsea Hospital. She was trained in obstetrics and gynaecology at the Charité University Hospital of Berlin with a sub-specialism in gynaecological oncology. Professor Fotopoulou was the leading consultant and vice director of the Clinic for Gynecology at the Charité in Berlin, one of the largest accredited centres for gynaecological cancer in Germany. She has also been the principal coordinator of the European Competence Centre for Ovarian Cancer, which was created in 2007 in Berlin. Her principal area of clinical practice relates to ultra-radical surgery for advanced and relapsed ovarian cancer and in general advanced gynaecological cancer. She is also trained in undertaking reconstructive surgery of cancer patients after cancer surgery. Among her research projects she has investigated the implementation of targeted therapies in advanced gynaecological cancers and their implications on surgical practice. She has broad experience in national and international clinical and surgical trials in gynaecological cancers and is involved in the German, British and European committees for guidelines development in ovarian cancer.
o. Pf. Gordon Jayson
Medical Advisory Board Member
o. Pf. Gordon Jayson
Medical Advisory Board Member
Professor Jayson qualified in Medicine at the University of Oxford and then completed his general medical and oncology training in Manchester. Having completed a PhD in heparan sulphate and angiogenesis, he took up a Senior Lecturer position in 1997 at The Christie and The University of Manchester, specialising in ovarian cancer and angiogenic drug development. He has led or written numerous phase I-III ovarian cancer trials. Taking up a Chair in Medical Oncology in 2005, he has served on Cancer Research UK's New Agents Committee, the Medical Research Council's Drug and Device Development Committee and the National Clinical Trials Committee. Professor Jayson is now Chair of Translational Research for the Medical Research Council ICON7 and chairs Manchester Cancer Systemic Anti-Cancer Therapy Board, developing a strategy for systemic therapy across Manchester. He has written over 190 publications and has attracted tens of millions of pounds of grant income, focusing on ovarian cancer and angiogenic drug development.
p. Pf. Lesley Fallowfield
Medical Advisory Board Member
p. Pf. Lesley Fallowfield
Medical Advisory Board Member
Lesley Fallowfield is Professor of Psycho-oncology at Brighton & Sussex Medical School, University of Sussex where she is Director of the Cancer Research UK Psychosocial Oncology Group. Professor Fallowfield originally trained as a nurse at Guy's Hospital London but then did a BSc in Experimental Psychology at Sussex. Research for her doctorate in psychophysics was completed at the Universities of Sussex and Cambridge. She was a senior lecturer in health psychology at the Royal London Medical College where she gained a career development fellowship and a major programme grant from the Cancer Research Campaign. In 1991 she became full-time Director of the Psychosocial Oncology Group. Professor Fallowfield was awarded the first European chair in Psycho-oncology from University College London in 1997. Her research interests are wide and include the measurement of quality of life in clinical trials of cancer therapy and the training of communication skills for health care professionals in cancer. She has published over 300 papers, and written or co-edited 3 books. She lectures and runs training workshops throughout the world in psychosocial oncology, quality of life assessment and communication skills.
q. Mr Andy Nordin
Medical advisory board member
q. Mr Andy Nordin
Medical advisory board member
Mr Andy Nordin is a subspecialist gynaecological oncologist. He has led the East Kent Gynaecological Oncology Centre multidisciplinarly team in East Kent since 2000, and is an Honorary Senior Lecturer at University College London. Andy was the National Clinical Lead for Gynaecology for the NHS Cancer Services Collaborative from 2001-2008, and continues as the Clinical Advisor for Gynaecology to NHS Cancer Improvement. He chairs the national group of cancer network lead clinicians and the gynaecology group of the National Cancer Intelligence Network (NCIN). Andy worked with the EORTC in the development of quality of life modules for gynaecological cancers, and produced patient educational videos and information for the NHS Choices internet site.
r. Dr Simon Leeson
Medical Advisory Board Member
r. Dr Simon Leeson
Medical Advisory Board Member
Simon is a gynaecologist and oncologist at Betsi Catwaladr University Health Board in North Wales.
s. Dr James MacKay
Medical Advisory Board Member
s. Dr James MacKay
Medical Advisory Board Member
Dr James Mackay is the only accredited Consultant Clinical Genetic Oncologist with a special interest in cancer genetics in the UK and is an honorary senior lecturer in the Department of Biology, University College London.  His clinical interests are cancer genetics, inherited cancer, cancer screening and the introduction of complex genetic tests into clinical cancer care. Dr Mackay established regional cancer genetics services in East Anglia and North East Thames and developed a remote cancer genetics service, using real time tele-conferencing technology, based in Great Ormond Street Hospital NHS Trust. He holds honorary consultant contracts at several large London teaching hospitals.
t. Pf. Glenn McCluggage
Medical advisory board member
t. Pf. Glenn McCluggage
Medical advisory board member
Glenn McCluggage is a Consultant Gynaecological Pathologist in Department of Pathology, Royal Group of Hospitals Trust, Belfast. In 2005, he was appointed as an honorary Professor of Gynaecological Pathology of the Queen's University of Belfast. He is currently president of the British Association of Gynaecological Pathologists, secretary of the International Society of Gynaecological Pathologists and the national pathology representative on the NCRI (National Cancer Research Institute) Gynaecological Clinical Studies Group.
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