The aim of this research is to find new ways in which healthcare workers might help with the emotional impact of being treated for late-stage ovarian cancer. Ovacome is partnering with a panel of clinicians working in the field to undertake this wide-reaching study.

PATRON – PAtient and specialisT suRvey in Ovarian caNcer – is recruiting 200 people with stage 3 or 4 ovarian, fallopian tube and peritoneal cancer, alongside feedback from 100 healthcare professionals.

To take part in the study, you must have finished your first line chemotherapy treatment two to 12 months prior to undertaking the survey. 

All participants will receive £50 on successful completion of the survey.

The aim is to identify areas for improvement in supporting the lives of patients at different stages of their treatment pathway and to contribute to the mutual understanding between patients and their consultants, nurses and surgeons.

As well as looking at the emotional and physical effects felt by patients after treatment, it will investigate whether clinicians understand these challenges and how they might be supported to address the clinical and emotional needs of those they treat.

This is non-interventional observational study, meaning that participants will not receive any treatment as part of the study. The study is a survey only.

To take part in the study, call 01625 668988.

If you have questions and would like to discuss the study further with the Ovacome team first, please call us on 0800 008 7054 or email [email protected] .

.

Ovacome’s chief executive Victoria Clare welcomes this research and urges the community to take part:

.

"We are looking forward to collaborating with clinicians on this important piece of research. It is so important to include the views of those diagnosed when planning treatment and support."

.

The survey will remain open for five months online. The research will then be written up and submitted for publication in a peer reviewed journal.

.

"This piece of research will be crucial in ensuring that we are all working from a solid evidence base to meet the emotional and physical needs of those diagnosed with ovarian cancer."

.

To take part in the study, call 0800 008 7054 or email [email protected] stating that you are interested in participating in the PATRON study. You will then be given further information and instructions.

.

Further criteria for participation:

  • You must have received treatment in the UK.
  • You must be over 18.
  • You must have been diagnosed with epithelial ovarian cancer (high grade serous, low grade serous, endometrioid, clear cell, mucinous), fallopian tube cancer, or primary peritoneal cancer.
  • You must have been diagnosed at stage 3 or 4.
  • As first line treatment you must have had either:
    • Chemotherapy only
    • Surgery and then chemotherapy
    • Chemotherapy, followed by surgery, followed by more chemotherapy
  • You must have finished your first line chemotherapy treatment between two and 12 months prior to taking part in the survey.